European Conference on Rare Diseases & Orphan Product (ECRD 2026) Report

Zebra Dx Coalition at European Conference on Rare Diseases & Orphan Product (ECRD 2026)

3โ€“4 June 2026 | O2 Universum Congress Center, Prague, Czech Republicย 

Last week, the Zebra Diagnosis Coalition attended the 13th edition of the European Conference on Rare Diseases & Orphan Products (ECRD 2026), hosted by EURORDIS โ€“ Rare Diseases Europe in Prague.

For the Zebra Dx Coalition, ECRD 2026 was a prime opportunity to engage with the broader rare disease community, as it enabled us to bring our work on barriers to early diagnosis right into the heart of the European policy debate. Indeed, on the sidelines of the conference, we also launched our poster on Barriers to Early Diagnosis: How Public Healthcare Systems in Europe Shape the Rare Disease Diagnostic Odyssey. 

For those who missed it on our social channels, the poster offers a synthetic overview of the key findings from our White Paper! Findings that will be presented and further explored during our upcoming webinar scheduled on 25 June 2026. Stay tuned!